Huntington's Disease Association
Categories of Work: Advice, support & information services, Advocacy, Education/training, Health and well-being, Telephone helpline, Youth work
Who do you work with?: All Client Groups
Organisation description: The Huntington’s Disease Association exists to support people affected by the disease and to provide information and advice to professionals whose task it is to support Huntington’s disease families. The HDA is financed through the generosity of trusts, foundations, the statutory and corporate sectors, branches of the HDA, members and friends.
Specialist HD Advisory Service
These consist of teams of Specialist HD Advisers who:
provide information and advice to families
answer crisis calls and liaise with other professional service providers
promote and develop a full range of local services
identify suitable respite and residential care facilities
liaise with local branches and self-help groups
give talks and organise seminars and training days
provide speakers for training sessions
provide workshops for service providers and users such as health, social services, nursing homes, and residential care staff teams
Specialist HD Advisory Service
These consist of teams of Specialist HD Advisers who:
provide information and advice to families
answer crisis calls and liaise with other professional service providers
promote and develop a full range of local services
identify suitable respite and residential care facilities
liaise with local branches and self-help groups
give talks and organise seminars and training days
provide speakers for training sessions
provide workshops for service providers and users such as health, social services, nursing homes, and residential care staff teams
Contact details
Suite 24, Liverpool, L3 5TF